Here you will find links to organizations and agencies that educate about various stroke conditions and treatments and offer support services to stroke survivors.  At first glance there seems to be a lack of actual support but, once you’re connected to someone actively in this stroke life, you will find open doors, local and online support groups and specific information relevant to you.  These links are a good starting point to get you where you need to be.

Stroke injury to the brain has a different cause than traumatic brain injury but the results are the same.   There is a lot of debate among researchers, hospitals and physicians as to whether stroke should be recoded and deemed a brain injury/disorder.  This is great news as it opens the door for insurance covered treatments, support, rehab and funding for home modifications, disability transportation and equipment currently only prescribed to TBI patients.   

Until then, Traumatic Brain Injury organizations are already open arm accepting stroke survivors with support and resources so check out their sites too. 

Vascular dementia is a real side effect of stroke and similar in presentation to Alzheimer’s and other forms of dementia.  Because dementia affects cognition and speech, stroke survivors can utilize some of their techniques and coping skills.  Sites for these diseases offer support and education for both stroke survivors and their families dealing with any degree of dementia including the coined phrase, “stroke brain”, a decrease in the ability to process, reason or sequence emotions, thoughts and behaviors. 

 

Glossary of Stroke Terminology

Cleveland Clinic Neurological Institute

American Speech – Language – Hearing Association

Heart, Vascular and Thoracic Institute

Canadian Stroke Recovery Trials

Canine Companions

BeMedWise – learn medications and interactions, get help with prescriptions

Consumer Consortium on Assisted Living – the needs, rights and protections of assisted living residents

Benefits Checkup

Alliance of Claims Assistance – help filing insurance claims and complaints

Centers for Medicare and Medicaid Services

Commission on Accreditation of Rehabilitation Facilities

Disability Info Online – disability related government resources

Get Palliative Care

Lighthouse Guild – offering assistance to those with visual impairments

Low Income Home Energy Assistance Program

The National Accessible Library – online library for blind and vision impaired individuals

National Center for Complementary and Alternative Medicine

National Guardianship Association

National Library Service for the Blind & Physically Handicapped

National Network of Estate Planning Attorneys

National PACE Association – health care assistance for people on limited incomes

National Rehabilitation Information Center

Patient Advocate Foundation

Rebuilding Together – Repairing the homes of those in need

Rural Health Information Hub

National Resource Directory – supports recovery for service members, veterans and their family

Meals on Wheels

Christopher & Dana Reeve Foundation

EnableMe

 

Department of Aging  by State